Policies

State Policies

State coverage is organized around official legislature websites and structured adapters. The directory includes all 50 states and the District of Columbia; records are added only after source verification.

Policies affecting people with ALS, gene carriers, families, researchers, and caregivers can be introduced, amended, passed, stalled, rejected, vetoed, or allowed to expire without becoming law.

This tracker includes both current and historical legislation so users can see not only what became law, but also what was proposed and what happened to it.

Use the filters below to explore legislation by state, status, subject, and session.

Policy records are linked to exact official government sources. Check the official source directly for current text, status, effective dates, and eligibility.

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Search policiesJurisdictionStateRecord typeCurrent / historicalInsurance typeStatusTopics Select one or moreSession / yearYearSession range

Verified policy records

Explore legislation and current law

Policy records with exact official sources
Policy / statute	State / federal	Plain-language purpose	Status	Introduced	Approved / enacted	Sponsor / support	Session	Official source
CURRENT LAW
F.S. §627.4301 — Genetic information; life, disability, and long-term-care insurancegenetic discrimination · genetic testing · genetic privacy · life insurance · disability insurance · LTC insuranceStatute · Statute	Florida	Current Florida statute defining genetic information and restricting specified insurer actions and use of genetic-test results, subject to statutory exceptions.	CURRENT LAWCurrent Florida Statutes text	Not stated	07-01-2020	Not stated	Current statute	Official source ↗
Last action: Not stated · Committees: Not stated · Vote summary: Not statedOpen full record →
F.S. §627.65625 — Group health plan eligibility and genetic informationgenetic discrimination · genetic privacy · health insuranceStatute · Statute	Florida	Current Florida statute limiting the use of health status, medical condition, claims, genetic information, and disability in group health plan eligibility and premium rules.	CURRENT LAWCurrent Florida Statutes text	Not stated	Not stated	Not stated	Current statute	Official source ↗
Last action: Not stated · Committees: Not stated · Vote summary: Not statedOpen full record →
F.S. §641.31073 — HMO eligibility and genetic informationgenetic discrimination · genetic privacy · health insuranceStatute · Statute	Florida	Current Florida statute limiting the use of health status, medical condition, claims, genetic information, and disability in HMO eligibility and premium rules.	CURRENT LAWCurrent Florida Statutes text	Not stated	Not stated	Not stated	Current statute	Official source ↗
Last action: Not stated · Committees: Not stated · Vote summary: Not statedOpen full record →
Cal. Civ. Code §§56.18–56.186 — California Genetic Information Privacy Actgenetic privacy · genetic testing · life insurance · disability insurance · LTC insurance · health insuranceStatute · Statute	California	Regulates collection, use, maintenance, and disclosure of genetic data by direct-to-consumer genetic testing companies, including restrictions involving health, life, long-term-care, disability insurance, and employment decision-makers.	CURRENT LAWCurrent California Civil Code chapter; not a direct underwriting prohibition on insurers	Not stated	01-01-2022	Not stated	Current statute	Official source ↗
Last action: Not stated · Committees: Not stated · Vote summary: Not statedOpen full record →
CURRENT / PENDING LEGISLATION
HB 401 — Insurance rates and underwriting advertising costslife insurance · health insurance · Other ALS-related policyBill · Current Bill	Georgia	Proposed changes to how certain insurance rates and underwriting-related advertising costs are addressed in Georgia insurance law.	INTRODUCED	02-11-2025	Not stated	Rep. Bethany M. Frye; Rep. Joseph Gullett Momtahan	2025–2026	Official source ↗
Last action: 02-13-2025 · Committees: Georgia House Insurance Committee · Vote summary: Not statedOpen full record →
AB 1798 — Genetic testing for life and disability insurancegenetic discrimination · genetic testing · genetic privacy · life insurance · disability insuranceBill · Current Bill	California	Regulates how life and disability insurers use genetic characteristics and genetic-test results in underwriting, including protections for asymptomatic genetic risk and carrier-status information under the law’s terms.	SIGNED / ENACTEDApproved by the Governor on 09-30-2026 and chaptered as Chapter 897, Statutes of 2026; effective 01-01-2027.	02-10-2026	09-30-2026	Assembly Member Lori Wilson	2025–2026	Official source ↗
Last action: 09-30-2026 · Committees: Not stated · Vote summary: Not statedOpen full record →
HISTORICAL ENACTED LEGISLATION
HB 1344 — Georgia Insurance Affordability and Claims Integrity Acthealth insurance · Other ALS-related policyBill · Historical Enacted Bill	Georgia	Modified selected Georgia insurance affordability, claims, and related insurance requirements.	SIGNED / ENACTED	02-11-2026	05-12-2026	Rep. Lauren McDonald Reeves; Rep. Matt Reeves	2025–2026	Official source ↗
Last action: 05-12-2026 · Committees: House Insurance Committee; Senate Insurance and Labor Committee · Vote summary: House: 166–3 on 02-26-2026; Senate: 39–10 on 03-31-2026; Senate: 53–0 on 04-02-2026; House: 164–3 on 04-02-2026Open full record →
HB 1189 — Genetic Information and Insurancegenetic discrimination · genetic testing · genetic privacy · life insurance · disability insurance · LTC insuranceBill · Historical Enacted Bill	Florida	Prohibited specified life, disability, and long-term-care insurers from canceling, limiting, denying, or changing premiums based on genetic information, with statutory exceptions.	SIGNED / ENACTEDChapter 2020-159	12-03-2019	06-30-2020	Rep. Paul Renner; Rep. Heather Fitzenhagen	2020	Official source ↗
Last action: 07-01-2020 · Committees: Not stated · Vote summary: Not stated · Companion bills: SB 1564Open full record →
SB 41 — Genetic Information Privacy Actgenetic privacy · genetic testing · life insurance · disability insurance · LTC insurance · health insuranceBill · Historical Enacted Bill	California	Established privacy, consent, security, and disclosure requirements for direct-to-consumer genetic testing companies, including limits involving insurance decision-makers.	SIGNED / ENACTEDChapter 596, Statutes of 2021	12-07-2020	10-06-2021	Sen. Tom Umberg	2021–2022	Official source ↗
Last action: 10-06-2021 · Committees: Not stated · Vote summary: Not statedOpen full record →
HISTORICAL UNSUCCESSFUL LEGISLATION
HB 420 — Genetic testing coverage and cancer imaginggenetic testing · health insurance · genetic privacy · Other ALS-related policyBill · Historical Failed Bill	Georgia	Proposed requiring certain health benefit policies to cover genetic testing for an inherited mutation and cancer imaging under specified conditions.	DIED / SESSION ENDED	02-19-2025	Not stated	Rep. Darlene Taylor; Rep. Lee Hawkins	2025–2026	Official source ↗
Last action: 02-25-2025 · Committees: Georgia House Insurance Committee · Vote summary: Not statedOpen full record →
HB 855 — Genetic Information and Insurancegenetic discrimination · genetic testing · genetic privacy · life insurance · disability insurance · LTC insuranceBill · Historical Failed Bill	Florida	Proposed restrictions on the use of genetic information and genetic-test results by specified insurers, including life, disability, and long-term-care insurance.	DIED / SESSION ENDEDDied / did not become law	12-04-2017	Not stated	Rep. Jason Brodeur	2018	Official source ↗
Last action: 03-10-2018 · Committees: Not stated · Vote summary: Not stated · Companion bills: SB 1106Open full record →
SB 1106 — Genetic Information and Insurancegenetic discrimination · genetic testing · genetic privacy · life insurance · disability insurance · LTC insuranceBill · Historical Failed Bill	Florida	Senate companion proposal addressing insurer use of genetic information and genetic-test results.	DIED / SESSION ENDEDCompanion proposal; did not become law	01-05-2018	Not stated	Not stated	2018	Official source ↗
Last action: 03-10-2018 · Committees: Not stated · Vote summary: Not stated · Companion bills: HB 855Open full record →
SB 1564 — Genetic Information and Insurancegenetic discrimination · genetic testing · genetic privacy · life insurance · disability insurance · LTC insuranceBill · Historical Failed Bill	Florida	Senate companion proposal addressing genetic information and specified insurance underwriting decisions.	LAID ON TABLELaid on table after companion HB 1189 advanced	01-07-2020	Not stated	Not stated	2020	Official source ↗
Last action: 03-10-2020 · Committees: Not stated · Vote summary: Not stated · Companion bills: HB 1189Open full record →

CURRENT LAW

Florida · Florida

F.S. §627.4301 — Genetic information; life, disability, and long-term-care insurance

CURRENT LAW

Current Florida statute defining genetic information and restricting specified insurer actions and use of genetic-test results, subject to statutory exceptions.

Policy type: Statute
Record type: Statute
Status: CURRENT LAW
Verification: Verified
Session: Current statute
Introduced: Not stated
Approved / effective: 07-01-2020
Last verified: 09-30-2026

Status detail: Current Florida Statutes text

View policy details Official source ↗

Florida · Florida

F.S. §627.65625 — Group health plan eligibility and genetic information

CURRENT LAW

Current Florida statute limiting the use of health status, medical condition, claims, genetic information, and disability in group health plan eligibility and premium rules.

Policy type: Statute
Record type: Statute
Status: CURRENT LAW
Verification: Verified
Session: Current statute
Introduced: Not stated
Approved / effective: Not stated
Last verified: 09-30-2026

Status detail: Current Florida Statutes text

View policy details Official source ↗

Florida · Florida

F.S. §641.31073 — HMO eligibility and genetic information

CURRENT LAW

Current Florida statute limiting the use of health status, medical condition, claims, genetic information, and disability in HMO eligibility and premium rules.

Policy type: Statute
Record type: Statute
Status: CURRENT LAW
Verification: Verified
Session: Current statute
Introduced: Not stated
Approved / effective: Not stated
Last verified: 09-30-2026

Status detail: Current Florida Statutes text

View policy details Official source ↗

California · California

Cal. Civ. Code §§56.18–56.186 — California Genetic Information Privacy Act

CURRENT LAW

Regulates collection, use, maintenance, and disclosure of genetic data by direct-to-consumer genetic testing companies, including restrictions involving health, life, long-term-care, disability insurance, and employment decision-makers.

Policy type: Statute
Record type: Statute
Status: CURRENT LAW
Verification: Verified
Session: Current statute
Introduced: Not stated
Approved / effective: 01-01-2022
Last verified: 09-30-2026

Status detail: Current California Civil Code chapter; not a direct underwriting prohibition on insurers

View policy details Official source ↗

CURRENT / PENDING LEGISLATION

Georgia · Georgia

HB 401 — Insurance rates and underwriting advertising costs

INTRODUCED

Proposed changes to how certain insurance rates and underwriting-related advertising costs are addressed in Georgia insurance law.

Policy type: Bill
Record type: Current Bill
Status: INTRODUCED
Verification: Verified
Session: 2025–2026
Introduced: 02-11-2025
Approved / effective: Not stated
Last verified: 09-30-2026

View policy details Official source ↗

California · California

AB 1798 — Genetic testing for life and disability insurance

SIGNED / ENACTED

Regulates how life and disability insurers use genetic characteristics and genetic-test results in underwriting, including protections for asymptomatic genetic risk and carrier-status information under the law’s terms.

Policy type: Bill
Record type: Current Bill
Status: SIGNED / ENACTED
Verification: Verified
Session: 2025–2026
Introduced: 02-10-2026
Approved / effective: 09-30-2026
Last verified: 09-30-2026

Status detail: Approved by the Governor on 09-30-2026 and chaptered as Chapter 897, Statutes of 2026; effective 01-01-2027.

View policy details Official source ↗

HISTORICAL ENACTED LEGISLATION

Georgia · Georgia

HB 1344 — Georgia Insurance Affordability and Claims Integrity Act

SIGNED / ENACTED

Modified selected Georgia insurance affordability, claims, and related insurance requirements.

Policy type: Bill
Record type: Historical Enacted Bill
Status: SIGNED / ENACTED
Verification: Verified
Session: 2025–2026
Introduced: 02-11-2026
Approved / effective: 05-12-2026
Last verified: 09-30-2026

View policy details Official source ↗

Florida · Florida

HB 1189 — Genetic Information and Insurance

SIGNED / ENACTED

Prohibited specified life, disability, and long-term-care insurers from canceling, limiting, denying, or changing premiums based on genetic information, with statutory exceptions.

Policy type: Bill
Record type: Historical Enacted Bill
Status: SIGNED / ENACTED
Verification: Verified
Session: 2020
Introduced: 12-03-2019
Approved / effective: 06-30-2020
Last verified: 09-30-2026

Status detail: Chapter 2020-159

View policy details Official source ↗

California · California

SB 41 — Genetic Information Privacy Act

SIGNED / ENACTED

Established privacy, consent, security, and disclosure requirements for direct-to-consumer genetic testing companies, including limits involving insurance decision-makers.

Policy type: Bill
Record type: Historical Enacted Bill
Status: SIGNED / ENACTED
Verification: Verified
Session: 2021–2022
Introduced: 12-07-2020
Approved / effective: 10-06-2021
Last verified: 09-30-2026

Status detail: Chapter 596, Statutes of 2021

View policy details Official source ↗

HISTORICAL UNSUCCESSFUL LEGISLATION

Georgia · Georgia

HB 420 — Genetic testing coverage and cancer imaging

DIED / SESSION ENDED

Proposed requiring certain health benefit policies to cover genetic testing for an inherited mutation and cancer imaging under specified conditions.

Policy type: Bill
Record type: Historical Failed Bill
Status: DIED / SESSION ENDED
Verification: Verified
Session: 2025–2026
Introduced: 02-19-2025
Approved / effective: Not stated
Last verified: 09-30-2026

View policy details Official source ↗

Florida · Florida

HB 855 — Genetic Information and Insurance

DIED / SESSION ENDED

Proposed restrictions on the use of genetic information and genetic-test results by specified insurers, including life, disability, and long-term-care insurance.

Policy type: Bill
Record type: Historical Failed Bill
Status: DIED / SESSION ENDED
Verification: Verified
Session: 2018
Introduced: 12-04-2017
Approved / effective: Not stated
Last verified: 09-30-2026

Status detail: Died / did not become law

View policy details Official source ↗

Florida · Florida

SB 1106 — Genetic Information and Insurance

DIED / SESSION ENDED

Senate companion proposal addressing insurer use of genetic information and genetic-test results.

Policy type: Bill
Record type: Historical Failed Bill
Status: DIED / SESSION ENDED
Verification: Verified
Session: 2018
Introduced: 01-05-2018
Approved / effective: Not stated
Last verified: 09-30-2026

Status detail: Companion proposal; did not become law

View policy details Official source ↗

Florida · Florida

SB 1564 — Genetic Information and Insurance

LAID ON TABLE

Senate companion proposal addressing genetic information and specified insurance underwriting decisions.

Policy type: Bill
Record type: Historical Failed Bill
Status: LAID ON TABLE
Verification: Verified
Session: 2020
Introduced: 01-07-2020
Approved / effective: Not stated
Last verified: 09-30-2026

Status detail: Laid on table after companion HB 1189 advanced

View policy details Official source ↗

Genetic information and insurance

Federal Title II of the Genetic Information Nondiscrimination Act (GINA) addresses employers’ use of genetic information. It does not by itself create a general federal ban on the use of genetic information in life, disability, or long-term-care insurance underwriting. State rules can differ and should be checked against the exact state source.

Read the official GINA explanation ↗

ALS research and access policies

Research-funding, expanded-access, Right to Try, clinical-trial, drug-approval, and research-infrastructure records are grouped by their official legislative status. A policy record does not guarantee trial access, treatment access, coverage, or eligibility.

Benefits and disability policies

Benefits, disability, Medicare, Medicaid, and caregiver-support records can affect access differently by program and jurisdiction. Verify the current rule, eligibility criteria, and effective date with the official program or a qualified benefits professional.

Policy records are educational and neutral. A policy record is not legal, insurance, benefits, or medical advice. Confirm current text, status, effective dates, and eligibility with the official source and a qualified professional.

Policy records last verified: 09-30-2026

Official state source directory

Each entry identifies the official legislature domain used for future ingestion and verification. A domain is not a claim that a particular bill is current. Read the official Georgia legislative process guide ↗