Policies / Policy record
SB 41 — Genetic Information Privacy Act
California · California · SIGNED / ENACTED
Purpose
Established privacy, consent, security, and disclosure requirements for direct-to-consumer genetic testing companies, including limits involving insurance decision-makers.
Official summary
The official California bill record identifies SB 41 and its enactment as the Genetic Information Privacy Act.
ALS and gene-carrier relevance
Included because the official California law addresses genetic-data privacy and disclosure to health, life, long-term-care, and disability insurance decision-makers.
Policy scope and insurance types
- Policy scope
- Genetic data privacy, Life insurance, Disability insurance, Long-term-care insurance, Health insurance, Employment
- Genetic policy scope
- Not stated
- Insurance types affected
- Health, Life, Disability, Long-Term Care
- Policy type
- Bill
- Record type
- Historical Enacted Bill
- Time status
- Historical
- Verification
- Verified
- Discovered from
- Official Legislature
- Status detail
- Chapter 596, Statutes of 2021
- Companion bills
- Not stated
- Derived from bill
- Not stated
- Codified as
- Not stated
Jurisdiction and session
- Jurisdiction
- California · California
- Session
- 2021–2022
- Topics
- genetic privacy, genetic testing, life insurance, disability insurance, LTC insurance, health insurance
- Bill / act number
- SB 41 · Chapter 596, Statutes of 2021
- Introduced
- 12-07-2020
- Last action
- 10-06-2021
- Passed House / Assembly
- Not stated
- Passed Senate
- Not stated
- Governor action
- Not stated
- Approved / enacted
- 10-06-2021
- Effective
- 01-01-2022
- Vetoed
- Not stated
Sponsors, cosponsors, and committees
Sponsors
- Sen. Tom Umberg
Cosponsors
No verified names recorded in this policy snapshot.
Committees
No verified names recorded in this policy snapshot.
Legislative support and votes
Vote history
No verified names recorded in this policy snapshot.
Verified organization support
No verified organization support recorded in this policy snapshot.
Verified opposition
No verified organization opposition recorded in this policy snapshot.
Historical timeline
Introduced.
Approved and chaptered.
Effective.
Official text and source links
External links open in a new tab. Exact official sources are used for verified records.
Last verified: 09-30-2026
Last verified source: Open verification source ↗
Policy records are educational and neutral. A policy record is not legal, insurance, benefits, or medical advice. Confirm current text, status, effective dates, and eligibility with the official source and a qualified professional.