Policies / Policy record
Cal. Civ. Code §§56.18–56.186 — California Genetic Information Privacy Act
California · California · CURRENT LAW
Purpose
Regulates collection, use, maintenance, and disclosure of genetic data by direct-to-consumer genetic testing companies, including restrictions involving health, life, long-term-care, disability insurance, and employment decision-makers.
Official summary
The official California code chapter defines genetic data and genetic testing, requires consent and privacy controls, and restricts disclosure to entities responsible for administering or making decisions about health, life, long-term-care, disability insurance, or employment.
ALS and gene-carrier relevance
Included because this current law materially addresses genetic-data privacy and disclosure to insurance and employment decision-makers. It is displayed separately from direct insurer underwriting legislation.
Policy scope and insurance types
- Policy scope
- Genetic data privacy, Life insurance, Disability insurance, Long-term-care insurance, Health insurance, Employment
- Genetic policy scope
- Not stated
- Insurance types affected
- Health, Life, Disability, Long-Term Care
- Policy type
- Statute
- Record type
- Statute
- Time status
- Current
- Verification
- Verified
- Discovered from
- Official Legislature
- Status detail
- Current California Civil Code chapter; not a direct underwriting prohibition on insurers
- Companion bills
- Not stated
- Derived from bill
- Not stated
- Codified as
- Not stated
Jurisdiction and session
- Jurisdiction
- California · California
- Session
- Current statute
- Topics
- genetic privacy, genetic testing, life insurance, disability insurance, LTC insurance, health insurance
- Bill / act number
- Cal. Civ. Code §§56.18–56.186
- Introduced
- Not stated
- Last action
- Not stated
- Passed House / Assembly
- Not stated
- Passed Senate
- Not stated
- Governor action
- Not stated
- Approved / enacted
- Not stated
- Effective
- 01-01-2022
- Vetoed
- Not stated
Sponsors, cosponsors, and committees
Sponsors
No verified names recorded in this policy snapshot.
Cosponsors
No verified names recorded in this policy snapshot.
Committees
No verified names recorded in this policy snapshot.
Legislative support and votes
Vote history
No verified names recorded in this policy snapshot.
Verified organization support
No verified organization support recorded in this policy snapshot.
Verified opposition
No verified organization opposition recorded in this policy snapshot.
Historical timeline
SB 41 introduced.
SB 41 approved and chaptered as Chapter 596.
Genetic Information Privacy Act became effective.
Official text and source links
External links open in a new tab. Exact official sources are used for verified records.
Last verified: 09-30-2026
Last verified source: Open verification source ↗
Policy records are educational and neutral. A policy record is not legal, insurance, benefits, or medical advice. Confirm current text, status, effective dates, and eligibility with the official source and a qualified professional.