Living With ALS

Sleep

Sleep disruption can have several causes in ALS. Morning headaches and daytime sleepiness can be breathing warning signs and should be discussed with the clinical team.

Start with the problem

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This question box finds a relevant ALS Hub page. It does not diagnose or provide medical advice.

Why sleep may change

  • nocturnal hypoventilation
  • inability to reposition
  • pain
  • cramps
  • secretions
  • anxiety
  • medications
  • sleep-disordered breathing

Sources: Amyotrophic lateral sclerosis — Diagnosis and treatment · Managing Breathing Issues

Warning signs

  • morning headaches
  • daytime sleepiness
  • difficulty lying flat
  • frequent nighttime waking
  • unrefreshing sleep

Breathing-related symptoms should link directly to the Breathing page for respiratory assessment and support.

Sources: Amyotrophic lateral sclerosis — Diagnosis and treatment · Managing Breathing Issues

Positioning and nighttime support

Ask the care team about safe repositioning, bed positioning, secretion management, pain or cramp support, and whether respiratory testing is needed.

Sources: Amyotrophic lateral sclerosis — Diagnosis and treatment · Managing Breathing Issues

Go to Breathing

Open Breathing and ALS

Sources: Managing Breathing Issues

Sources & Further Reading

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This information is for education and does not replace individualized medical advice, diagnosis, treatment, or emergency care.

Last reviewed: 09-30-2026

Medical information should be reviewed periodically as guidance, benefits, and equipment options change.