Caregivers

Support Groups

Support can come from other caregivers, ALS organizations, local programs, clinicians, counselors, faith communities, and trusted friends. Choose the type of support that feels usable right now.

What a support group can offer

  • A place to compare practical ideas without pretending every family is the same.
  • Connection with people who understand caregiving language and uncertainty.
  • Information about local services, equipment, respite, and appointments.
  • A way to talk about grief, anger, guilt, relief, or loneliness without judgment.

Sources: Support for Caregivers · Caregiving

Ways to find support

Start with the ALS Association, Family Caregiver Alliance, ACL and Eldercare Locator, a local ALS clinic social worker, or VA Caregiver Support when applicable. Ask whether meetings are virtual, in person, moderated, caregiver-only, or open to the person living with ALS.

Sources: Support for Caregivers · Caregiver Articles, Webinars & Videos · Eldercare Locator · VA Caregiver Support Program

Choose a group safely

  • Ask how privacy is handled and whether participation is anonymous.
  • Treat medical, legal, and financial suggestions as discussion—not individualized advice.
  • Confirm treatment or benefits information with the official source or care team.
  • Leave a group that feels shaming, coercive, or unsafe.

Sources: Caregiver Articles, Webinars & Videos · Support for Caregivers

Sources & Further Reading

These source cards link directly to the original material. External websites open in a new tab.

Caregiver information is educational and does not replace individualized instruction from the ALS team, a licensed clinician, an employer or benefits professional, or an emergency response system.

Caregiver information last reviewed: 09-30-2026

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