Living With ALS
ALS can involve motor symptoms as well as changes in cognition, behavior, emotional expression, mood, or language. These areas deserve separate, respectful assessment.
Start with the problem
This question box finds a relevant ALS Hub page. It does not diagnose or provide medical advice.
Possible changes can involve executive function, language, planning, judgment, or social cognition. The person’s history and the care team’s assessment matter more than assumptions based on one behavior.
Sources: Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis · FYI: Cognitive and behavioral changes in ALS
Possible changes can include apathy, disinhibition, repetitive behavior, or reduced insight. Caregivers may notice changes before the person does; bring observations to the clinical team with specific examples.
ALS and frontotemporal dementia can overlap in some people and families. This spectrum involvement can affect motor symptoms, behavior, personality, language, or other cognitive functions.
Sources: FYI: Cognitive and behavioral changes in ALS · Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis
Neurologic involuntary laughing or crying can occur and may not reflect depression or the person’s underlying mood. Ask the clinician about assessment and management.
Sources: Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis · FYI: Cognitive and behavioral changes in ALS
Depression and anxiety should be considered separately from ALS cognitive impairment and behavioral change. Emotional support may include the ALS team, counseling, social work, medication review, or mental-health care.
Sources: Coping with ALS · FYI: Cognitive and behavioral changes in ALS
Sources & Further Reading
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American Academy of Neurology / PubMed Central
Evidence review covering multidisciplinary ALS care, symptoms, communication, nutrition, respiratory care, and comfort.
Visit sourceThe ALS Association
ALS-specific guide to cognitive, behavioral, and frontotemporal-spectrum changes.
Visit sourceThe ALS Association
Support-oriented information about emotional health and coping with ALS.
Visit sourceThis information is for education and does not replace individualized medical advice, diagnosis, treatment, or emergency care.
Last reviewed: 09-30-2026
Medical information should be reviewed periodically as guidance, benefits, and equipment options change.